Maarten P.M. Jansen
1*, Rob Baltussen
1, Kristine Bærøe
21 Department for Health Evidence, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands.
2 Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway
Abstract
Accountable decision-makers are required to legitimize their priority setting decisions in health to members of
society. In this perspective we stress the point that fair, legitimate processes should reflect efforts of authorities
to treat all stakeholders as moral equals in terms of providing all people with well-justified, reasonable reasons to
endorse the decisions. We argue there is a special moral concern for being accountable to those who are potentially
adversely affected by decisions. Health authorities need to operationalize this requirement into real world action.
In this perspective, we operationalize five key steps in doing so, in terms of (i) proactively identifying potentially
adversely affected stakeholders; (ii) comprehensively including them in the decision-making process; (iii) ensuring
meaningful participation; (iv) communication of recommendations or decisions; and (v) the organization of
evaluation and appeal mechanisms. Health authorities are advised to use a checklist in the form of 29 reflective
questions, aligned with these five key steps, to assist them in the practical organization of legitimate priority setting
in healthcare.