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Int J Health Policy Manag. 2022;11(8): 1401-1412. doi: 10.34172/ijhpm.2021.35
PMID: 34060273        PMCID: PMC9808362

Original Article

Researchers’ and Research Users’ Experiences With and Reasons for Working Together in Spinal Cord Injury Research Partnerships: A Qualitative Study

Femke Hoekstra 1,2 * ORCID, Lee Schaefer 3 ORCID, Peter Athanasopoulos 4, Heather L. Gainforth 1,2

Cited by CrossRef:


1- Nuechterlein A, Barretto T, Yehia A, Illes J. Bridges of perspectives: representation of people with lived experience of spinal cord injury in editorial boards and peer review. Res Integr Peer Rev. 2023;8(1) [Crossref]
2- Bochkezanian V, Anderson K. Comprehensive and person-centred approach in research: what is missing?. Spinal Cord. 2022;60(2):187 [Crossref]
3- Ullah M, Fossey E, Stuckey R. Meaning of Work Participation After Spinal Cord Injury in Bangladesh: A Qualitative Study in a Low- and Middle-Income Country Context. J Occup Rehabil. 2024; [Crossref]
4- Bourke J, Bragge P, River J, Sinnott Jerram K, Arora M, Middleton J. Shining a light on the road towards conducting principle-based co-production research in rehabilitation. Front Rehabil Sci. 2024;5 [Crossref]
5- Manohara V, Nuechterlein A, Barretto T, Illes J. Priorities and opportunities for advocacy in SCI: An international web-based review. The Journal of Spinal Cord Medicine. 2025;48(3):367 [Crossref]
6- Veith D, Gill M, Beck L, Whitmarsh C, Fernandez K, Linde M, Asp A, Mills C, Bendel M, Grahn P, Zhao K. Functional outcomes and participants’ perspectives during short-term application of spinal stimulation in individuals with spinal cord injury. The Journal of Spinal Cord Medicine. 2024;:1 [Crossref]
7- Gainforth H, Shwed A, Giroux E, Hoekstra F, McKay R, Schaefer L, Sibley K, Kaiser A, McPhail L, McBride C, Munro B, West C. Transforming research systems for meaningful engagement: a reflexive thematic analysis of spinal cord injury researchers’ barriers and facilitators to using the integrated knowledge translation guiding principles. Disability and Rehabilitation. 2024;46(23):5545 [Crossref]
8- Anderson K. Equitable partnerships between scientists and persons living with spinal cord injury will strengthen research scope, quality, and outcomes. 2021;34(6):783 [Crossref]
9- Hoekstra F, Trigo F, Sibley K, Graham I, Kennefick M, Mrklas K, Nguyen T, Vis-Dunbar M, Gainforth H. Systematic overviews of partnership principles and strategies identified from health research about spinal cord injury and related health conditions: A scoping review. The Journal of Spinal Cord Medicine. 2023;46(4):614 [Crossref]